Epilepsy, PTSD and pain

[Sugar]

Im new to all this to GQ.

 

I had a few Grand Mal Seizures in late 2015 and after countless appointments with specialists and going through all the tests and finally when my JAK2 and blood count test came back they diagnosed me with Polycythaemia (Rubra) Vera. I'm on blood thinners and a few other meds which just makes me sick and the side affects are just making thing worse.

 

I cant comment on dosage or anything like that but as Ozzy said have a search around and read up as much as you can on the subject. And dosage effect differs from person to person same with the strain, its all about trial error realy.

 

Im still on the fence about all this talk about CBD vs THC and which is better for Epilepsy. My search for what works for me will be a long and exciting journey

 

All the best with you daughter GQ.

 

OMD.

 

OMD, there is a recent study about CBD interacting with a liver enzyme that prevents metabolism of various medications and it was mentioned as an eg, with blood thinners

I Agree it really is a bit trial and error.

[GREENQUEEN]

Thank you everyone for all your help all this info is fantastic news for me and my daughter I wish I knew about this site a year ago as I would be so much further along then where I am at the present but hopefully we start getting to a more positive place soon,I can't express my gratitude to you all for taking some time out of your lives to help educated me and push me in the right direction,thanks people thanks so much

[GREENQUEEN]

Thanks for sharing omd I will defiantly keep learning and I'm sorry to hear your unwell as well hopefully you can improve with a little time,all the best

[Mctavish]

Hi everyone im new to the site and i have lots of questions I'm just wondering if anyone can explain to me how to self medicate if you have access to a lot of cannabis but not sure how to use it and how much to take on a daily basis,my daughter has very severe epilepsy and I suffer PTSD and pain,I can't wait for the government, we need medicine now any ideas or info would be greatly appreciated

Mate it all comes down to strain with medication but can be very personal too, what works for me may not work for you..for your daughter i would look at rso oil starting with a grain of rice size and go from there but the oil must be no less than 80%indica, check out pheonix tears and rick simpson oil.

I suffer advanced degenerative disease of the spine, chronic osteoarthritis and several nerve impingements and bulding discs along with chronic depression.

I use the same oil as mentioned above for pain relief at 1gm serves 2 times a day and get 100%for several hours, i top up with indica smoke, for my depression powerful sativas smoked do me really well but a mate that suffers chronic ptsd uses high cbd strain sativas with great success.

Just because you have access to alot of cannabis doesnt nessesarily mean its going to be an effective medicine for you but if desperate something is often better than nothing...trust me.

Check out seed banks online and research strains, thats what i done and you soon get an idea for whats going to work. Then it comes down to experimentation which isnt all bad .

Also i was told that using oil rectally will eliminate 90% of the psychoactive effects as it by passes the liver when used this way, msg me if i can be of more assistance, good luck mate.

[GREENQUEEN]

Thank you very much mctavish that is exactly the sort if info I'm after,I'm so sorry to hear about your situation and am glad your finding some effective meds and that is the place I'm trying to get to,it is a little daunting as there is so much to learn, I've learnt more in the last week than I ever have through our doctor and I'm just try to educate myself as I'm no rocket scientist so its all a lot to take in but knowledge is power so I'm not going to give up,my next step is learning how to make medicine with the correct ingredients and dosages so thank you again as your letter has restored my hope that this can help and to stick with it,I think initially I was just overwhelmed with so much info but I'm starting to get my head around it,cheers for your help

[GREENQUEEN]

Evening osa peoples,at our last appointment with the paediatrician I brought up the topic off medical cannabis for epilepsy, AGAIN and he seemed to have very little knowledge about it as I found myself correcting him about a few things,I wasn't trying to insult him I just wanted him to have his facts straight before discarding it as a treatment option but basically he just wasn't interested in discussing the topic,so I followed my own gut instinct and sourced out a few different oils,tincture's,atomised oromucosal tincture's,and straight rso for a recovery dose if we and when we need it and my daughter has responded absolutely amazingly well to the medicine, better than we ever hoped for,so I spoke with our GP about it and she was great about it and was very supportive she even said she would help us find another paediatrician if he wasn't willing to see sense,so I've been stressing out to the max about this appointment with him,trying to find the right way to word things and approach it with knowledge and facts so I could try and get him on board with us,well the appointment was for Monday morning we waited for 4hrs at the hospital on Monday to be told that we'd have to come back the next day as there had been a emergency and he wouldn't be seeing anyone today,so we come back Tuesday and wait another 2hrs before seeing him,the waiting times are ridiculous but its seems to have been worth the wait because in 9weeks this bloke has had a complete turn around,I mean its was like it wasn't even the same doctor,I mentioned that we had been trying cannabis oil and it seemed to be making a huge improvement and he was so supportive I couldn't believe it,he was willing to write a script for pharmaceutical medical cannabis even though we don't have a need for it as we are able to access quality cannabis meds and he was even good about that,however he was concerned about the quality of the meds that we have sourced out,I told him I knew it was good quality because I could see the difference in my daughter so he sent us straight away to go and have a brain scan so we could see for sure what the effects are having on her epilepsy, I was nervous about this but agreed anyway and I'm so glad I did as it showed that her seizures have been reduced by about 75% with zero drop attacks and zero grand mals and for someone that's was having a seizure every 30to40seconds this is fantastic news and she has only been taking the meds for 3weeks so I'm still hoping to reduce the seizures a lot more yet as the medical cannabis builds up in her system and the doctor was so happy to see the positive results that he ok,ed us to start weening her of some of her pharmaceuticals that haven't been working anyways, he also wrote up a script for madazalom just incase she has a bad seizure while reducing her meds and they don't give that stuff out to often,he even said he'd sort out some sort out a medical certificate or script that would allow her to get a drivers license when the time comes proving she remains seizure free for a certain amount of time,I was so surprised at the total turn around in this doctor that I'm still a bit in shock but i think things couldn't have gone any better,he mentioned that he had attended 3doctor seminars about medical cannabis in the past 2months and he has obviously been doing a fair bit of homework in his own time to,I applaud him we need more doctors like this guy,he also mentioned that he wasn't making any notes about this on daughters medical charts just incase his files get called up to be checked over by police or any other medical association,he also showed me on his computer that if I was to be getting the medical cannabis through him via a script that it would be costing us around 30THOUSAND DOLLARS a year to treat our daughters epilepsy, I couldn't believe the price,i feel so sorry for all the poor people that are waiting for this drug to be available only to find out they won't be able to afford it,its wrong,so wrong but for now its a small step forward and I just hope that everyone could have the success that were having,touch wood of course

 

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[mlbblitz]

That's awesome news that they were supporting and it's great that it's helping your little girl but jeez that price for the year is ridiculous for anyone who isn't able to work or is struggling.

 

Posted from the OZ Stoners mobile app

[GREENQUEEN]

Thanks mlbblitz I hear what your saying about the cost my jaw nearly hit the floor when he told me the cost and my heart sank a little as I know there's a lot of people that are waiting for these drugs but simply won't be able to afford it once there accessible,its just not fair for the people that need it the most,30'000 dollars a year will be out reach for most average/normal people I'm sure

 

Posted from the OZ Stoners mobile app

[mlbblitz]

We've got a few close friends who use edibles to help with their fibro myalgia as they are going through chemo and both myself and partner use to help with PTSD and even though I'm in a good paying job there is no way on top of living cost and a mortgage we could do it

 

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[merl1n]

Hey GQ,

Well, that is amazing that the dr changed his mind on canna as a med. I just wish more dr's would investigate rather than simply towing the AMA line. A MASSIVE, HUGE plus from this is that you now have concrete evidence, via the scans, of the benefit for your daughter. You say that your dr is willing to write a letter regarding your daughter obtaining a drivers license when the time comes BUT even with a dr's letter I doubt that licensing/police would accept canna use, even as a med. I would recommend you investigate this further before the time comes, just so that you have the information.

 

The cost of non PBS registered meds is ridiculous. The big pharmas tried to take the Australian Govt to court through the WTO over the PBS a few years ago. Presently our govt, via the PBS, tells the pharmas how much they are willing to pay for a drug, where as in other countries they can charge whatever they like. The WTO ruled against the pharmas and they were not happy at all. The pharmas are profiteering off of the sick, the more life sustaining the drug, the more they charge. This maybe legally OK but morally they are bankrupt. This is why I keep saying "It's all about the sacred $$$$" and this is what you can clearly see by the $30k/yr bill for medicinal canna. I can understand your dr's concern about using street weed for medical purposes as there is lots of chemicals (PGR's, insecticides etc) often used on street weed, but if you're growing your own, you can be sure what you are using is not going to contaminate the end product.

Now we need the govt to approve canna for other conditions, but the problem for many of us is that scans may not show the benefit as clearly. My GP supports my use of canna as a medication, but presently can not authorise it. I can get scripts written up by him for any PBS approved med I need. I have enough opiates, benzos etc here to sink a battleship(to sink me as well )but canna has not been approved as a pain medication, so it's out of reach as a prescription. I hope, pray, beg that this will change, but until then, I'll continue growing my own meds.

 

Merl1n