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Epilepsy - Tonic Clonic / Grand Mal


somedark

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Great to have discovered this forum. I must say swim a while ago surprised me that there is not only no medical trials for adults but all the legislation and push for legalisation of medial cannabis is surrounding children.

 

Yes I am a first time poster. I just am at a loss as to why this is the case when its proven to have an affect on controlling even the worst forms in adults just with smoking (youtube videos prove this). Why all the emphasis on kids? Is it a hearts and minds approach first to get legalisation through faster?

 

I live in SA and do no even know a single person who can get their hands on any outdoors otherwise I would be making oils for them to try rather than the 4 different medications that are destroying their body and mind.

 

Has anyone got any links to journals or studies on cannabis, smoked or oils that for adults (18yrs+), is this something to do with over developed brains?

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Hey Somedark,

There is a major push via Childhood epilepsy for canna use and I believe this is the primary reason most of the heavily publicised reports are based on childhood studies and not anecdotal experiences. Youtube videos are not going to cut it when it comes to proof. The govt want scientific reports from some professor with a Bachelor of Medical Sciences as a minimum before they will listen. A video made by Johnno from down the pub who gave his kid a choof and caught it on his phone is never going to work.

As for adults, the govt simply think the adults advocating medical canna just want to get their hands on canna legally, whether that's medical or recreational. The govt don't separate med or rec, they just hear "Cannabis". All they see is the 1960-70's hippie, getting stoned.

 

As for the vid's here's a link https://www.learngreenflower.com/

They have some excellent information here, some of which is scientifically supported, but this is a pay site. I have completed a couple of their courses and gained a fair bit from them in regard to medical uses and the reduction of opiates, so imo well worth it. But you gotta pay, you can pay for a month watch the vids, download the PDF of each presentation, then you have the info, if that's what you want to do.

 

Merl1n

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Maybe merl1n, but if your docs arent recommending cannabis maybe you need a new doc. I have literally had every fucking medical professional i have spoken to over the last year tell me that cannabis is likely to be the best treatment for me. "Its going to be legal soon anyway" apparently...

 

I will give everybody a hint. The first thing you ask your doctor is what anandamide is. They wont know. The second thing you ask them is... what are the CB1 and CB2 receptor sites. They wont know. At that point you tell them theyre unfamiliar with the current scientific literature surrounding cannabis and youre not willing to argue with somebody that has such a limited understanding and yes you use it as a medical treatment for your ailment..... It is a stalemate position for them.... there is no way out (only in)..

 

The tides are turning,

Edited by _Puff_Tough_
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Hey Puff Tuff,

This statement of yours is laughable at best. I have, in the past, challenged the thinking of specialist and to put it mildly they do not like to be challenged. I dare you to walk into a neurologists rooms and tell them '...you're not willing to argue with somebody that has such a limited understanding...' and see how far you get. The neuro community is VERY small, you insult one and you've basically insulted them all. Word travels real fast in this minute, tight little circle, the very minute you leave. Have you ever heard of 'Chinese whispers'?? Multiply it 10fold. And the idea you can simply put them in a stalemate situation over canna is an arrogant attitude beyond belief. The tide maybe turning but trying that sort of shit ends up with you being drowned by the incoming tide.

Now if it was epilepsy, they may listen as there has been studies and tests done. But my condition is not epilepsy related, so it is not considered an option. G.P's? sure, they are in support, but the professors and specialists they will crucify you with that attitude. I have to deal with these pricks on a monthly basis and if you think I haven't broached the subject you'd be VERY wrong. Going in there with your arrogant attitude will simply get you ignored. It doesn't work, I know, I've tried.

 

So sorry, but you are wrong on so many levels, its laughable.

Merl1n

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i can see the circumstance you are in now, brain injury is a serious condition and very little research suggests it is good for your condition perhaps......Its risky business... The advice wasnt really suggested to you by any means... i understand you have dealt with docs for some time. Sometimes doctors need to recognise that they need to study a little as their only arguments for the discontinuation of its use are now totally moot due to current hard scientific understandings about canna. In my case though Family GPs, and not often clinical psychs,psychiatrists,councillors have all been left in a stalemate situation when the aforementioned was discussed with them...

 

They generally just agree that its the right treatment. I have challenged all of the medical professionals i have dealt with over the years to show me some current scientific literature that suggests it is in any way harmful or more harmful than the drugs they would rather prescribe me and not one has been up to the challenge; i am a "show me" kinda guy, i like to see the studies/literature thanks doc! ;). I go as far as to suggest i'd never touch it again if they could ! They have no understanding of the endocannabinoid system because some (most) docs dont seem to read pubmed,medical clinical studies or research the fucking current scientific medical literature nearly as much as they should!

 

After years of this they now ALL conclude that its likely the right treatment.... and that "My thoughts on cannabis has dramatically changed over the course of the last few years". It was once nearly impossible arguing about the medical benefits cannabis has to offer but now its hard to argue with the science that suggests there may even be more (or is likely to be) yet to be unlocked medical therapeutic potential within canna. If i talk to any medical professionals now those 2 questions mentioned above should atleast ring the bells of those that cant answer those two simple questions... a litmus test.

 

They should be able to answer those two questions unless they have had their head in the sand for the last decade atleast... and that may be enough to ring the "calling bell".

 

Obviously it depends on the circumstance and your condition/s as it may not be recognised as treatment, sorry my post was vague..... The thread was about epilepsy. But hey if your doctor doesnt recognise that it has therapeutic potential for your condition, all things considered maybe you need a new specialist his head is far up his ass now isnt it mate....

Edited by _Puff_Tough_
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Yes, well, we have 6 specialist neuro's locally who have a 'specialty' in my field, 3 of which are private. I've seen one private and his bill would make your eyes water. The others do charge Medicare BUT have a decent sized gap added. 99%, public and private all have their heads up their asses in my experience, so short of travelling interstate to find anything like an independent specialist is impossible.

Presently, I'll stick with my GP. At least he supports my canna use, even if our state govt don't

 

Merl1n

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I did not mean to start anything (being a bit new here) but i find this conversation getting legit and very relevant. If you are in Adelaide thats right the neuro community is super small and as I have found it, very closed to new ideas and i think this is mostly just protecting reputation. I have been totally unimpressed with their care and engagement, seems very text book. Anyway not here to rant about that. Thanks for this conversation. @merlin i feel you when it comes to the medical bills! Hundreds for a 45 min consult.

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Hey Somedark,

Don't be too worried about 'starting anything', this is an open forum. And as with all open forums, some people will have opposing views. An explanation of those views is often needed to clarify a stance, either for or against. That is the case with anything that's posted here. Not everyone will agree.

Yes, I am talking about Adelaide. You say it's 'closed' lol I say its more barricaded. The iron curtain has got nothing compared to this lot lol Their opinions are often so far behind the times, for them the world is still considered to be flat and planet Earth is the centre of the known universe.

As for their fees, well, they add up real quick.

 

Merl1n

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